Jesus Loves Peter. This I know.

It has been a hard 10 days as Peter’s mom.

It has been a hard 3.5 years as Peter’s mom. It has been almost exactly 3 years since we learned that the symptoms we were seeing in Peter were the result of a congenital abnormality in his brain. Over time we adjusted and Peter is just Peter. He is more work than a typical child. But he is just as wonderful and perfect and loving as any little guy.

But sometimes it just gets hard for a season. Not necessarily because of Peter but because of the world he lives in. One that administrators seem to rule. A world where he gets the short end of the stick and he didn’t even do anything wrong.

So, it is hard to be his mom because I see the injustice and the hurt and the hard on my boy.

In the last 10 days there have been insurance problems leading to his therapy being cancelled indefinitely. There have been school problems where his heart and spirit were ignored, even by generally well-meaning adults. I have cried so many tears. I have made so many phone calls. I have fought so hard for him. Some I can fix and some I am still trying. I don’t really ever stop trying!

BUT, through it all I have to remember something.

That God loves Peter even more than I do. That God knows what Peter needs even more than I do. That God sees where this is all going and I just don’t.

The night we first got his diagnosis was one of the scariest of my life. I can recall those emotions in a heartbeat. I cried as I rocked him to sleep that night. And then through my tears I tried to sing his normal nighttime songs: You Are My Sunshine and Jesus Loves You. I barely got through the first one. He will ALWAYS be my sunshine. Nothing that the doctors say can change that. Then I sang “Jesus loves Peter, this I know” and I couldn’t keep singing. Because it was true. He does love Peter. Not Peter with a perfect “normal” brain, He loves Peter with a “not quite formed” brain. He loves Peter more than I do. I clung to that fact in that moment.

I have held that fact close for these years of Peter’s life. God knows what therapy Peter needs. God will help us find a way to pay for it. God will help guide the teachers at school. God has held Peter and God will not stop now. To believe anything less is to let the Devil win.

I still have a lot of phone calls and emails and forms. There is some work on the ground that has to be done. But I will continue to pray and ask for what Peter needs. I don’t know what his future holds (as much as I would like some answers even in the short term) but I know who holds his future. And the one that hold his future is the Jesus who loves him. This is I know.